Friday, June 24, 2011

Blah....

Whelp... contrast study pretty much showed us what is wrong with her belly. (What the doctor pretty much already knew). Her bowls are blocked. The contrast that they put down really put some stress on her body. Today they had to go up 2 on her pip. :( Her oxygen levels were a lot higher today because of how her belly felt. That contrast to sat in her belly. It should of moved out of her belly by the end of last night. Just show how sick she really is. They had to put the suction tube back in her belly to get the contrast out because it's not coming out the bottom. She was more unstable today than she has ever been. What a ruff day for her. hey have been checking her blood gas ever 4 hours today because of her blood gas being so bad.

When I came in they had made her a bracelet. It had her name and a lady bug on it. SOOOOO cute! They are so good to her. They have been so wonderful. Tonight I played dress up. We found the cutest shirt! It said... "so loved" I held her for the first time wrapped up like a baby instead of kangaroo. :) I even gave her lots of kisses! It was nice to be able to see her face and to look at her face with out the suction tube in her mouth. She's so big now. Even though she only gained 1lbs 2oz she's soooo big. She's a different baby.

WE LOVE YOU EMILY! Sleep tight... Don't let the bed bugs bite.

Wednesday, June 22, 2011

Could it be?

Today Emily pooped 2 times. We dont' know what that means. But she did it. The sergeons want her to poop a few more times before we try anything else becuase there are so many things that this could be.

She's up to 1070 grams today. Her OFC stayed the same. And she's jsut hanging out.

I held her again today. I love my little girl.

Tuesday, June 21, 2011

One day...

One day I will wake up and this will all be a dream.

So hard to watch...

I watched the little boy Owen come off the Jet ventilator today and go on to the conventional one. My poor little Emily is on the Jet. They don't see her coming off it any time soon. Owen was born at 24 weeks and was a twin. His twin didn't make it, and he's doing good. How ever there was only 1 little Emily and she's doing worse then he.

She's up to 1012grams! :) Her penrose came out all the way today. Her belly looks bigger. And more dusky.

I held her today. She is so STINKY! She's 6 weeks old and hasn't had a bath yet.

Monday, June 20, 2011

another day

Emily's belly is still the same. No better and no worse. They are still backing out her penrose each day. Nothing coming out of that. She is 6 weeks old and still can't eat. BUT the good news is she is gaining... gaining... gaining.. today she was up to 990grams! 2lbs 3ozs. Wow! She was just 1lb 5ozs when she was born. Her head has also started to grow. She was born at 21cm and now up to 23.1cm today. 7 days ago she was still 21cm. She must of finally hit a growth spurt. If we could just feed her some milk. Her vent settings are still the same.

I held her agian today. She did pretty good! She loves being with her momma.

Saturday, June 18, 2011

Busy few days

Haven't had much time to blog between Caleb, Emily, working a few hours each day to getting yard sale ready and having it.

Miss Emily has had a great few stable days. Her belly is still really big (not good). She had the suction removed tuesday and her belly swelled wednesday. Nothing is moving around and still no dirty diapers. The doctor is very worried that it will never work. And that if we wanted to do the surgery that they would find what they are worried about, that her bowle is completely dead or most of it would be. And the fact that she might not survive the surgery. But her lungs, heart rate and blood pressures the same. Her penrose still gets back out a little each day. Nothing came out of it tonight.

She's up to 2lbs 1oz tonight! :) My little fatty! :) You could see her little but cheeks!

I held her again tonight. I love holding her. A good friend of mine got some really good pictures of me holding her tonight. Her "outfit" for the day. Cute lady bugs, black and red blankets. With the CUTEST Lady Bug hat.

Yard sale went really good. We will be doing it agian next Thrusday and Friday. Alot of good things still left. We had so many wonderful friends and family donate for her. We are so very thankful!

Wednesday, June 15, 2011

Some day soon

When I went to see Emily today her belly was a lot bigger. They just stopped the suction tube yesterday! They did and x-ray this morning and nothing seem alarming at the time. This afternoon when I was about to leave to get Caleb they asked me to take her temp before I leave. So i did. It was 1 degree lower than it should be. We checked it on the other arm, yep, the SAME. When we flipped her over her belly looked MUCH bigger than when I first got there. Each time the nurse touched her belly she pulled her arms and legs in and squinted in pain. We took her temp one more time. It was a little better but not much.

The doctors told me they were gonna give her a little longer off suction and re-check tomorrow. It was so hard to leave her tonight, but I had to get home to Caleb.

Please send an extra prayer to her tonight.