A talk with the Doctors...

My mom came into town today to visit. She and I went to visit Emily. We also got a chance to sit down and talk with the doctors today. Emily had a better day today. She hasn't had any seizures since last night/early this morning. Her blood pressure is still on the low side even though she is on medication to help keep it right where it needs to be. Her skin is still pretty bad, but looked more dried out today then yesterday. They want it to dry out so the new skin can grow. With the skin dried out and cracked it leaves room for infection. So this is something they are keeping an eye on. She still is peeing out a lot and losing fluid through he cracked skin. They are having a hard time keeping up with the amount she pees out. Although when I checked on her tonight she didn't need extra fluids when they checked her diaper. That was great. Her lungs are doing GREAT. She was on 21% oxygen today for a while and about 30% when I check on her. For those that don't know you and I breath 21%. So it was a great day for her. Her Ventilator setting are great too. They aren't to worried about about her lungs. :) They have a  few things that they think are causing her seizures. 1. Brain bleed-- pretty much ruled out. 2. Lack of oxygen and blood flow to brain at time of birth -- Which means she could have cerebral palsy ( we won't know much of that for a while because they have to do a EEG and she needs to be much older and bigger to fit this test). 3. infection-- this is ruled out. and 4. her output of fluids from her skin and pee as well as low blood pressure. They think she might have a PDA which can cause low blood pressure.

She is critically ill and considered unstable but stable at times. It's hour by hour with her because they have to keep and eye on her blood pressure to keep it up and watch for seizures. The hardest part to hear the doctors say is that she is still high risk for not making it. We just keep praying that everything will be ok and that she will get stronger. On Thursday she was back up to her birth weight 1lb 5 ozs. We might be holding off on feeding her until we can get her blood pressure more stable. They want her lower or off her blood pressure medication before trying this.

With all this being said all we can do is pray that each day she get stronger and healthier.