Emily had been doing well yesterday and last night and even till this morning. About 3ish today I got a call from the doctor. At that moment I knew this wasn't good. The doctor said that she had an update on Emily. Her blood pressure isn't responding to the 2 medications that she is on for it. It was low. They like the top number above 35 and it got down to 30. The doctor said her lungs, heart rate and urine output were all stable. They had the burn unit come up and take a look at her skin to see what they recommended for her. They said to put aquaphor 2 times a day and to start an anti fungal medication to counter act in case the aquaphor were to keep something in her cracked areas. They went on to talk to me about her blood pressure. She is maxed out of the amount of dose that she can have each time and that they can't go any higher with it. Her body now needs to take over and start regulating the blood pressure on its own. This blood pressure can do 1 of 2 things-- a. just be a number on the low side and nothing happen or b. continue to stay low or go lower in which her other organs would start to fail. All I could do was cry. Josh was at work and I was alone. I called Josh at work and talked to him about it. He left and came to get me. We went up to visit her. On our way I called to check on her and her blood pressure had started to go up. :) It was 39. When we go there they checked it again it was 37. :) Still good. When we left at 8pm it was 43!!! :-D Josh and I were able to talk to one of the doctors that were there tonight. He said that Emily is in the middle right now. She's not doing great but right now she doesn't seem to be doing horrible seeing that her blood pressure was starting to stabilize. He said at this point it would be hard to predict how she would be on Wednesday. But I will take the middle over the bottom. Josh asked the doctor if the medication phenobarbital could cause low blood pressure. He said yes. She was getting a dose every 12 hrs to stop seizures. She had to have a few extra doses of it the day before yesterday. They only like the level of phenobarbital to be around 20-40. Because she had those 2 extra doses it cause her levels to jump to 109. The doctor said he had no idea how this happened. Seeing that before they gave her the doses they check and it was only 20. It should have never jumped that high. So now she's not getting this medication at all to bring down the level. Which when they checked early it was down to 92.5. So it is coming down. Morphine also can cause low blood pressure. So we are just saying our prayers that we just had a scare today. I continue to call the nurse every few hours to check on her. They are holding off on feeding her until she quits "acting up". I just wish she would calm down so she can get feed. I know it would help her out sooooooo much.
Again, I want to thank each and everyone one who is reaching out to us and praying for our family.
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