Emily has been doing so great. She's been off her medication for her blood pressure and keeping a top number blood pressure in the ranges of 48-56. They did a picc line tonight and are taking the umbilical line catheter out.
However, when i called at 8 to check on her the nurse said that her blood gas wasn't the greatest. So they were going to recheck it in 10-15 mins. When I called back to check on it they told me to call back in 10 min. When I called back the nurse said that her blood gas was better but not idea. They went up on her pip by 1. She is on 24 now. She was on about 50% but came down to about 40%. They said that she needed suctioned and that seemed to help that blood gas out. When the doctors were at her bed side to check the blood gas she started to make some strange movements. The nurse had the doctors look. They said she was seizing. She's been off her medication for a few days because the level of that medication was to high in her blood. She was at about 50 this am. They reordered the medication and are starting her back on the medication. The nurse said she was resting and laying still.
Will she ever grow out of these seizures? I don't know if I am going to be able to rest tonight knowing that she could seize at anytime.
I will check on her again about 10:30 to check her blood gas. Hopefully it's much better.
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